DROP THE INSANITY BID, MAGNOTTA ET AL (DON'T GIVE US YOUR STIGMA!)

By now, we have all heard of several incidents of gun violence setting its cloud over the city of Toronto, as well as the murder and dismembership of a Chinese national student in Montreal, and more recently, a shooter at a theatre in Aurora, Colorado, at the premier screening of the Dark Knight Rising. Reports coming from Colorado indicate a substantial spike in the number of people accessing guns. Reports in Toronto cite the growing anger of people in the vicinities where the shootings, cited as gangland style, have taken place.

How many readers are believing that the shooters ought to be "insane", particularly Luka Magnotta, originally born Eric Newman, as his deed was most dreadful, filming himself dismembering the body of Jun Lin, a Chinese national who had been attending Concordia in Montreal? I don't believe in "insanity". Perhaps, some may want to re-word the term as "mental illness". Nah, don't think so. First, there is no research that shows that people with Axis I Disorders, or conditions that we refer to as "schizophrenia", "bipolar affective disorder" or "schizoaffective disorder", are more prone to commit these kinds of dreaded acts of violence than anybody else. Secondly, we are doing people with mental health conditions no favours by analysing these people's actions as "sick", "crazy" or "psycho".

True, we do need to distance ourselves from the kinds of people who do these dreadful things. We like to believe that we ourselves would never be capable of doing something like Magnotta, or lately, James Holmes in Colorado, just did. But, does that mean these people are "psychotic" or "mentally ill"? It certainly does help things when Greyhound Bus beheader, Vincent Li, suddenly reveals to the police he was "hearing voices" while on the bus, telling him to kill the passenger next to him. I am not sure if I believe this, but that is what the media reports, and what was put forward in the courts. To me, it was just defence counsel doing his job in protecting a client from having to serve a likely indeterminate life sentence for his heinous act on the bus, and unlikely due to any "real evidence" of mental disorder. I am not sure how to explain the behaviours of these people, but to me, citing them as having "mental illness" and being "not responsible" for doing this deed, is akin to saying "the devil made them do it".

We will likely never know what was going on with Vincent Li that day on the bus, but in my opinion, as well as the opinion of many people who watched this scenario cycle its way through the news, his lack of conviction for this offence, and the very likelihood he will be out in a few years is less than what he should have received. By even allowing this kind of "defence" of "not criminally responsible due to mental disorder" diminishes virtually every other person with the same diagnosis, or potentially the same diagnosis, in terms of who they are, and what kind of future they should have. While this business with Vincent Li was flowing through the airwaves and was the talk of the town, I was in the midst of fighting disability claims on behalf of three persons, all with distinctive histories and issues. Due to privilege, I cannot cite the specifics of these cases, but nevertheless, where one could have benefited from an evaluation from one of the consulting psychiatrists that I have worked with, all three declined to get involved with anything even nearly "mental health" related due to the stigma.

I have had others who experienced severe stress and anxiety as a result of their involvement with litigation and/or appeals, who could very well benefit from even one to one counselling with a professional. I was in a position of arranging a third party to take up the expenses of this support service, but still they refused, not necessarily denying they were likely suffering from a form of mental distress, but again, because of the stigma. Virtually all of these people self identified as being very much a part of the community, the workforce, their families and other social spheres, either prior to the matter that led them to my front door, or even still, while they were involved with my office. Many feared they would lose their job if "anybody found out" about this, or would never again be respected by their families, or friends they continued to cling onto.

This issue is coming up at a time where our society is not exactly empathetic towards persons with disabilities - any disability, including mental health disabilities. To add the burden of people like Vincent Li, Luka Magnotta, and James Holmes, on top of the growing antipathy towards people with mental health issues, is not the way to invite people to seek help, even when their problem is severe enough for a short-term hospitalization. They become even more treatment resistant, and they are more likely to hide their personal experiences, even from somebody like myself. I have had middle aged men, though not exclusively, come into my office to appeal a case for Canada Pension Plan disability, or ODSP, who omit any references to any "mental health history" when they explain to me why they believe they should be getting either or both benefits. It is often the case of the "bad back", the "inflamed knees" or "tremours" (and they would emphasize them as they hold their hands up for me to see), but not the lengthy hospitalizations and years of treatment for various mental health issues they want to focus on.

For those who have already been treated for mental health disorders, many are afraid to return to treatment due to the negative effects of many of the medications still used for the treatment of various types of conditions. If you looked up many of these drugs on the websites, you will find many of these drugs are the subject of legal actions, and people are seeking damages for various "effects" from taking these drugs for a period of time. I also know people who have developed severe forms of diabetes, heart disease and movement disorders as a result of overuse of these drugs as well. A dear friend is now reliant on the use of a power chair to access her surroundings. I later learned that she had spent many dreadful years being treated as a guinea pig for "mental health" issues it turned out she did not have. She has paid the price big time, while still trying to educate those around her as to what she could have been, had she not been subjected to these things.

In my youth, I became an avid follower of Phoenix Rising magazine, as well as the early psychiatric survivors' movement. This artefact is still available through the Psychiatric Survivor Archives of Toronto, currently maintained by "veterans" of the early movement, such as Don Weitz, Geoffrey Rheaume, David Reville, and likely Carla MacKague. These same people did not follow through and join the movement of "consumer-survivors" in the 1990's due to the co-opted nature of the funding for these initiatives. In those days, I as well as a small group of people here in Niagara took over the co-opted initiative, and formed our own "mental health survivors' network" that was decidely pro-choice, although not 100% anti-psychiatry. The Niagara Mental Health Survivors Network became a regional, member-based advocacy organization that had several committees, representatives on external bodies, as well as working deeply within the political system to fight for change. As its Executive Director, my function was multi-varied, including counseling individuals and their families with respect to their rights, access to services, and other related issues, such as how to access income support benefits. We also published a quarterly newsletter Niagara Survivors Journal, which reported on various important issues affecting our members. We also gave input to various policy and legislative initiatives. We pushed for "normalization" of expectations among persons with mental health issues, as well as access to supports as needed, and controlled by the individual.

Membership in the Niagara Mental Health Survivors Network was not limited to those who self-identified as having a "mental health disability". Members could be family members of individuals with a "mental health disability", community workers that worked in the "mental health" field, legal professionals, as well as others that gave a damn! Our board still had a majority of its members being persons who self identified as having "mental health issues", as well as the majority of our committees. Over the four years I led this organization, I met hundreds, if not thousands of persons, who experienced various aspects of the mental health system, for the sake of calling it that, here in Niagara, or elsewhere. Some of our members were anti-psychiatry, meaning they promoted the views of writers like Dr. Thomas Szasz, Dr. Jeff Maisson, Dr. Peter Breggin, among others. Others were more traditional in their beliefs, where they saw the value of medication and the mental health system.

However, my work with the Niagara Mental Health Survivors Network, and various other policy levels I was involved with before that, and afterwards, I knew very few persons who suffered one of the more commonly known "mental illnesses" like "schizophrenia" and "bipolar disorder" who had a violent bone in their body. In fact, I knew many so called "forensic patients", some of whom were housed at forensic wards in the prison system, who would not likely be released due to a finding of being "not criminally responsible". The vast majority of those deemed to be "not criminally responsible" were not psychotic in the traditional sense, but were broken in other ways. Their likely final diagnosis was some type of personality disorder, as opposed to an Axis I disorder like "bipolar disorder" or "schizophrenia". These are people we truly do not understand very well. We may some day understand them, but through my interactions with people like this, as well as professionals that worked with them, they were certainly a different mindset than those with traditional "mental health" histories.

I don't support the use of "mental illness" as a reason to "mitigate" one's responsibility or accountability for one's actions. Instead, I support if someone is in need of help, that they be sentenced normally, but treated while incarcerated in a prison system that is geared more to rehabilitation than the semi death row boot camps that Prime Minister Harper wants to set up. We hear that prison does not offer treatment programs for mental health, addictions or really much of anything. I say, why not? I have known people who have been in prison who have been denied care for even physical ailments, such as diabetes and heart disease. This is totally against the Geneva Convention, as far as I am concerned. The overall effect this has is to terrify certain individuals who have done something horrible, who would seek any way out of a life sentence in the barbaric conditions of the modern prison system. This in effect pushes a few of them to try the so called "insanity defence" to see if they can avoid prison, while people outside who "hear voices" and have been in psychiatric hospital who have never hurt anyone, will now be viewed by employers, neighbours, family and others, as somebody who just "might" hurt someone, as the particular diagnosis "schizophrenia" becomes tied to the kiss of death. In fact, a large portion of people with this diagnosis end up dying from suicide.

Throughout my career in the mental health field before I joined the legal profession, I experienced the suicides of many people. The suicide of my older brother is what triggered my understanding of many of these things, and my push to make things better for everybody. Each one hurt just as much as the one before did. The sad thing is that many times, I only spoke to the person a few hours before they finally ended their lives. Before their suicide, their lives were always off balance. Absolutely all of them saw no way out of their situation, whatever that might be ... and quite often, poverty, shame and stigma led them down that path, leaving some crisis or other to break the camel's back and turn their minds to suicide as the only way out. I've experienced suicide among some of my legal clients as well, which continues to bring despair to me. I knew many of them, their issues and their lives well enough to know what likely tipped the balance, but specifics could not be shared with even family.

What I do support however is something that everybody in our community would support if they knew it would make a difference. Social inequality leads to a major cause of mental disorder in the community, and worsens the impact and social isolation of those with diagnosed conditions. Research from the so called Third World has demonstrated that persons with even the most severe of diagnoses, such as "schizophrenia" do well in places where they are accepted and included, as part of whatever community they live in. The rate of "social recovery" from mental health disorders in these types of societies is very high, up to ninety percent in some regions. In the Western world, "schizophrenia" was originally referred to as dementia praecox (which referred to a person who is young and is permanently deteriorating in their personality). Never mind the extensive work I have done in reviewing the history of "mental health issues" and disability, and how eugenics, social isolation and even genocide, was a major issue, given society's view that people with these conditions will never get better.

We need to be open and accepting of people, even if they are "different". We have to put an end to chronic poverty, which leads to homelessness in some, as well as poor health and continued descent into the "black dog" of depression and other forms of mental distress. All people, regardless of their abilities, culture, level of appreciation, and so forth, have to have cause for hope, and a sense of belonging. While I am not a fan of the modern "consumer/survivor movement", it does give an important message to people not in the know. The needs of people with mental health issues is really no different than those of others; they all need a "home, a job, and a friend", just like the rest of us. If we continue to gear our society's direction to isolating people with mental health problems, deeming them to be less responsible than other persons, unable to make choices, and so forth, they will become what we believe them to be. If we continue our attitude of "everybody for themselves", which appears to have been set into place more and deeper since the mid-1980's, we will continue to see a rise in the number of theatre shooters, school shooters, dismember murderers, and so forth.

As Michael Moore explained on Piers Morgan last night about recent mass shootings in the U.S., he cited there are so many more mass shootings on a per capita basis in the United States, even though the prevalence of so called "mental illness" is roughly the same everywhere. Norway had its own whack job last year, that shot and killed about sixty people who were convening on an island for a type of retreat. However, this is something that does not happen to the extent that it does in the United States, and to a growing extent, Canada and Great Britain. To me, people like Wilkinson and Pickett, Author of the Spirit Level, are on to something. It is well known that societies that are less equal than others are prone to these sorts of outbursts of violence, spates of "mental illness", obesity, teen pregnancy, high school drop outs, and so forth.

However, I am not optimistic that things will change soon under our current government structure, with people in power that do not understand how inequality is ruining our nation and vulnerable individuals within it. I listen to Bruce Cockburn's Santiago Dawn http://www.youtube.com/watch?v=kTYTreb4qeU, and it is my dream that someday the society's most oppressed will find their way back home and find a way to belong and to participate in our community, and the jackboot law and order mentality will fade.

Your thoughts?

LIVING IN A TIME WARP IN MY OWN COMMUNITY

The region has its routines, cultures and environment, overall as each person and family within it have their own experiences. Those that benefit from the region's attributes the most are those that enjoyed a relatively clear middle class upbringing, usually with both parents intact and enough resources in one's family to send each child to a strong start. These are the people that grew up here or in a similar sized community with a pool in the backyard of a house their families owned, and a driver's license at sixteen with even the possibility of help from parents to obtain their first car. This gives people the lack of capacity to understand hardship from some angles, unless something serious and tragic happens within their family subsequently. Often their parents worked as GM workers, teachers, regional employees, nurses, among other stable professions. The last decade in which this stability was even possible for people was perhaps the early nineties, although less and less families have the kind of resources that would produce this element of stability.

People who have had this type of supportive background, parents like this and so forth, cannot picture what life is like without access to an automobile, or access to a good job. Many times parents give their word to employers to assist their children in gaining a foot in the door, or the parents are involved in a business, where they would hire their children to take it over as they decide to retire at a later date. These people who had these advantages have no idea how people without these advantages are screened out of jobs routinely, as employers like everybody else, prefers to take on somebody they know or who are related to somebody they know before they "take a chance on somebody new". A friend of mine in Niagara calls this the Family Compact. There are jobs still available, but not any of the good ones that are supposedly in the "private sector" - just the bad ones that the anointed favourites will not take.

On the contrary, I have met people who have not had the type of background described above, who are now struggling. For these people, economic recovery is meaningless, as the economy does not improve the prospects for these people - ever. These people started well behind the starting line and have experienced significantly more barriers than other people. They may not have both parents raising them, or in many cases, they have lived on their own from the time they were sixteen or seventeen. They did not have parents eager to teach them how to drive, and to allow them to practice with them for their ultimate road test. As a result, many of these people learn to drive late, or in some cases, not at all. It is not that driving is a rite of passage for everybody, but in the Niagara Region, where values of one's progress match those in the 1950's when compared to other communities, if one did not go through that rite of passage at that age, they are looked upon as somehow "damaged goods". Others that might have learned to drive, but have lost their license due to medical conditions are viewed as equally "damaged".

I related this to a Toronto audience, mostly consisting of people who lived in Toronto or other large cities most of their lives, and they found this to be unbelievable. Even those whose youth was demarcated in the same way as described above, their worth or value as a person is not affected because they never learned to drive, or cannot drive due to medical conditions, or whatever. In fact, in a cosmopolitan way, many people choose not to drive in a large city and as such, this choice can be accommodated. An employer does not view any of these people who either cannot or will not drive as any less qualified for most jobs in a true cosmopolitan community, and would consider what that person can bring to the company, as opposed to how he or she brings themselves to the workplace. Unfortunately, in smaller regions, Niagara of which is at least one, employers have created major barriers to persons with disabilities, persons who just did not have the advantage of parental support to get them on the road, or persons without any funds to own and maintain their own vehicles.

Long term reliance on social assistance for these people is not uncommon for many of these people, including those who might have an advanced education. I know engineers, teachers, social workers, construction workers, researchers, and others who have spent several years on Ontario Works due to an inability to afford a vehicle, or due to medical or other restrictions on their driving privilege. In fact, one's access to a vehicle and their ability to drive it on a regular basis has become yet one more tool in the arsenal of employers that may not want to hire "damaged goods". At the same time, employers see no reason not to continue to demand driver's licenses and personal ownership of a vehicle to be a key qualification for a job.

I notice the region has and continues to perform poor planning decisions in this area as well, as the region's decision makers and planners are working under the assumption that everybody from every part of this region has a driver's license and personal access to a vehicle. The city for example is planning to tear down the West Park Pool that is currently located in the west end's only high school, which by the way, is also on the chopping block with the District School Board of Niagara. Those using the pool are from a disproportionate number of public housing projects, senior citizens, as well as students from the entire south end of the community. While some people did drive in to use the West Park Pool, its location was accessible to the people who live in the Western Hill neighbourhood which was identified as a "priority" neighbourhood by the region. Living in a "priority" neighbourhood does not necessarily mean you are poor, but the chances are greater that you are, as there is a large section of this neighbourhood devoted to low cost housing, rent-geared-to-income housing, as well as houses that could be bought for less than the city's average market value. This is a neighbourhood where people downsize in their retirement years, or move into lower cost housing with one's children, particularly single parents.

However, my city does not seem to understand why removing the West Park Pool from this neighbourhood is going to undermine this population's use of their brand spanking new facilities they are almost finished building in the north central end of town. First, there is no bus service to this new facility in the evenings and on weekends, something whoever planned this location has blithely ignored, likely because he or she believes that almost everybody drives or can "get a ride from a friend". At the same time, the parking for this facility has been carefully planned and accessibility for "handicapped" persons has been considered, yet they did not consider core accessibility for those that cannot drive in the first place, possibly due to a disability. The city will not spend any more money to keep the West Park Pool open because they say they have no money, which is unbelievable, given the multiple projects they recently approved to the tune of hundreds of millions of dollars. For the fifty million arena the city just approved, they are also seeking a multi-million dollar walkway for participants to use St. Paul Street to go to the arena from the downtown parking lots, presumably. If they have money for this farce, they have money to repair the West Park Pool to standard and to continue its operation, alongside the new one they built.

When I spoke at City Council when the issue of the West Park Pool was discussed, virtually all the councillors around the table dropped their jaws when I advised them of the lack of evening and weekend bus service to their facilities. I asked one of them afterwards what were the qualifications of the person who would be planning and making these decisions. My bet is that the person must have a driver's license and access to a personal vehicle. Failure to consider transit riders in the design and location of a project to me is the type of thing that such an employee should be fired over, yet in a region like this it is highly unlikely. When somebody writing for the Toronto Sun wrote about the lack of bus access to a children's recreational program, their city hall immediately revised a transit route to have a bus stop in front of the said building. I somehow doubt the routes will be amended in this case to accommodate non drivers, as non drivers are not seen to exist in this region. At the same time, I am supposed to fork out increasing taxes year over year for hundreds of millions of dollars in road work, traffic lights, parking lot structures, and other privileges for people that drive. My guess is that drivers would not have to pay to park at the new Kiwanis facility. Why is it the taxpayers' responsibility to ensure a driver can park their car at a place like this, while it doesn't seem to be important to ensure bus access to the same location?

Besides this, the District School Board of Niagara is bent on closing the newest and only high school in the Western Hill neighbourhood. They will instead bus high school kids outside of their neighbourhood to other schools, which means if the child cannot be at the bus stop for whatever reason when it leaves, he or she may not be able to go to school that day. They will also not be able to participate in extra curricular activities, as the buses will likely leave before these activities begin. Henceforth, according to our friend Don Drummond, who had recently completed his review of government services, parents may be charged fees to help cover the cost of this busing. So, once again, we are going to have to pay for decisions made by other people. What is the effect of something like this in my neighbourhood?

First, I live in a food desert. This means there is no easy access to a grocery store near enough to my home to walk there. We can walk, but it takes about forty five minutes to get there, but it is the closest, yet most expensive food store in the area. There are no community centres or service hubs in my neighbourhood, unlike there being access to the same in other "richer" neighbourhoods. With this comes the dearth of after school activities for kids. There are no decent restaurants in my neighbourhood, or bank branches for people to do their banking. All we have is a couple of bars, a Chinese restaurant, a few convenience stores, a closed down body shop for cars, a beauty salon, a laundromat and a chiropodist's office which never seems to have anybody there. In the past few months, we have witnessed three foreclosures on homes that were owned, as well as a high turnover of tenant households. Other than that, we do have some senior citizens who are retired or semi retired, or housing that seems to be increasingly being built for Brock students. There are families here, but I somehow doubt they will remain in this neighbourhood once these other amenities are removed. Who wants to buy into a neighbourhood where there is no high school, community centre or any recreational facilities? Will I be able to sell my house? I somehow doubt it, unless the purchaser can somehow convert it readily to a student residence.

For people like myself, this neighbourhood has literally lost all of its appeal. I no longer want to live here. This neighbourhood has the lousiest bus service of anywhere in this city, especially on evenings and weekends. If the pool and the high school close, there will be no point in us continuing to stay here. I will have to find another place to live that is closer to one of the high schools that will remain open, so that my daughter will have some place to go when she becomes of age. She is not like my son, who is very enthusiastic about school and interested in learning. I do not want circumstances to be in place to encourage her to drop out. I have already heard from some students that were going to Thorold Secondary School, another school on the alleged chopping block, state to the committee that they may not be able to continue to attend school. For many people, a long bus ride each day is too much for them.

At the same time as this, hydro rates are skyrocketing in May, and the last time I went grocery shopping, prices went up by at least five percent. If this were happening in Toronto, it would not be tolerated. People would band together and fight these changes, and many times, they win. Here, there is a half hearted attempt by a citizens group to form a non profit group to keep the pool open, but it seems there is not as much of a fight by the same people to keep the high school open. Don't these folks live in the neighbourhood too? Are they not concerned about what will happen when they try to sell their homes? I must say that I was happy to hear about the group trying to save the pool, but we need a lot of people like our Mayor, city council, and even regional councillors to fight to keep the schools. In my view, all the school board has to do is enforce its own boundaries and they would not have to close any schools, but instead they intend to make it the problem of families that do not drive, do not have access to recreational services and money to help co-pay for the bus services.

Don't they understand? This is a PRIORITY neighbourhood! Perhaps, my next step will be to submit a Freedom of Information Act request to the city to find out ward by ward how much money per capita is being spent on services, and I know for a fact that my ward will show the lowest expenditures, simply because there are a large number of "throw away" people in this neighbourhood, people that city councillors, who all drive and live in big houses, do not consider to be worthy of having accessible services in their own neighbourhoods. I filled out a survey awhile back that asked how well I fit in within my neighbourhood, my community and my region, and my answer to this was "I don't feel I fit in at all". This does not say anything about the people here, as they are okay, but it does say a whole lot about how I feel I am treated as a non driver, who is not able to attend 90 - 95% of even "free events" that are put on by the community or by groups in it, and at the same time, have to be subject to the exhaust smoke of other people's vehicles, have to walk on sidewalks that are broken and subject to trip hazards or cyclists that blithely ignore the by-laws around riding a bike on the sidewalks. Again, if they do this in Toronto, people will bring this to city council and rally around it. Here, it is like nobody cares.

They once asked questions of how the city can improve neighbourhoods and accessibility issues. If they really wanted to do this, they can read this post and implement changes that would stop me from feeling so disgusted that I have to leave, just wishing I had enough money to do so.

STIGMA AS THE ENEMY -- MENTAL HEALTH CONSUMER/SURVIVORS BEWARE

There was a major series on Mental Health in the Globe & Mail recently.

There was a lot of discussion about how painful the stigma is. Many people do not seek treatment because of stigma. They may notice issues happening within themselves, and then the TV begins to repeat stories about people like Vincent Li that stabbed Tim McLean to death, or about some other killer that ended up happening to have a diagnosis ... smaller headlines accompanying the same story try to repeat that people with mental health problems are LESS likely to be violent than people with mental health problems. So, if this is the case, why mention the mental health diagnosis at all? We certainly don't refer to people's hemorrhoids or gastritis when it comes to reporting their crimes, so why do they beat the mental health dead horse?

There were a number of panelists and presenters that told their stories or spoke about potential solutions for the mental health crisis in Canada which resulted in a report from the Senate Committee on Social Affairs, Science and Technology entitled Out of the Shadows at Last. I read the entire report. While it did highlight some important components to mental health, it did not really give a lot of answers as to what to do about the stigma, other than suggested the latter established Mental Health Commission to embark on some campaign to end it. There are some attempts out there to try to compare people with mental health problems with persons with diabetes, but unfortunately, that isn't working. If it worked, it would have worked a long time ago, and we not be faced with a continued stigma that even prevents many persons with mental health disabilities from entering the workforce, engaging in relationships or doing other "normal" things. The media images don't show mental health clients doing "normal" things -- they are always portrayed as violent or completely incapable of looking after themselves.

In Helen Henderson's regular Toronto Star column, she referred to a British study where it was shown that one in eight persons stated they did not want to knowingly live next door to a person with a mental health diagnosis. Further, this same study revealed that over one third indicated they did not believe people with mental health issues were entitled in the same way as others to a paid job. Similar studies have been done in Canada that have also revealed that many people would not knowingly engage a professional like a doctor or a lawyer if it was known that the person had a mental health diagnosis. So, what incentive is there to get help anyways?

There are a large number of working people I know, many in the professions, that have told me in confidence that they have suffered from depression, bipolar disorder or some other diagnosis for many years, and to maintain confidentiality, they seek help from a professional in another region, as opposed to getting it here. These people are not homeless. They are not on ODSP (although a couple of them I am aware have been receiving a partial supplement from ODSP, as they work -- but they keep that to themselves too). These people are living independently and do not need "special housing" of any kind. They, like everybody else, needs a home that is affordable, with a door that locks, a roof that doesn't leak and enough space for them to enjoy their day to day living activities.

One of them was in my office the other day and we were talking about the Registered Disability Savings Program and he wanted to know how to get it. I advised him that he would need to qualify for the Disability Tax Credit first, then I explained what happens once they become eligible for the program. It is actually not a bad program for people with serious physical disabilities, as they do not need to stigmatize themselves by applying. However, for somebody with a mental health problem, they need to show that 90% or more of the time, they have a marked restriction in thinking, perceiving and/or remembering, which would reflect more of a neurological condition, although the examiners for the purposes of qualifying people would accept arguments involving problem solving, capacity to live independently, etc. as part of their evaluation for eligibility for mental health disability.

The problem with this is that if one values their status as a professional, a student or perhaps, even an executive or manager of an organization, accepting this definition of themselves would render them unemployable, which is something most of my professional friends do not want. They do not want to face a Fitness to Practice committee of the Teacher's College or other professional regulator that would somehow question one's capacity to carry out their profession, if they allegedly have "marked restrictions" in these areas. Of course, as soon as my friend went through my literature on the topic, the whole question of the RDSP became moot. The one gentleman who receives a partial ODSP now knew this would not work well for him, thus forcing him to live within the restricted means of that benefit.

People with mental health problems CAN get the Disability Tax Credit. I have appealed many cases successfully in the past; however, in not one of these cases, was the subject able to work. In fact, even in these cases we had to prove severity. These folks had problems managing their money, handling their personal hygiene, using public transportation independently, as well as being unable to handle stress - thus, the problem-solving issue. Some of these people were relatively high functioning, such as the case with Buchanan v Attorney General of Canada, but in the end, his case was proven but he was not able to work, and had to be cared for by his wife. The new 'mental health consumer/survivor' as they call themselves today wants to be independent, competent and functioning as a human being to the extent possible, and in most cases - if analyzed at the surface, they certainly wouldn't be eligible unless they met the criteria of my successful appellants in the matter.

If somebody were injured in a car accident, for example, and ended up in a wheelchair, or if they had only 20% of their hearing and required sign language or other adaptations, then the stigma of applying for and receiving something like this isn't there. The examples given in the Canada Revenue Agency guide appear to favour physical disability over mental disability and this is post-review of the criteria, despite what some progressive mental health organizations might like to pretend they have accomplished on people's behalf. To me, this should be based exclusively on additional costs - direct or indirect - as a result of having the disability. This was in fact the original purpose of the credit. However, a high functioning consumer/survivor that is working, but needs to pay out of pocket for psychological counseling services isn't eligible. A high functioning professional with epilepsy that cannot drive due to seizures is not eligible. This can be a very long list indeed, as we can all cull out examples from our own experience.

One of the other issues faced by consumer/survivors is that they are too often chronically unemployed or under-employed regardless of their educational attainment. In a study cited by the Global Business Roundtable on Mental Health, employers tend to under-estimate the number of people they have working for them that could possibly be consumer/survivors. In this study, the figure estimated was almost always under 5% - when the general figure given is that one in five persons at one time or other experience a mental health problem, according to the Canadian Mental Health Association. When they do have problems, they are not usually accommodated, but instead sent on disability leave. If the employee is fortunate enough to have a long-term disability insurance plan, they will at least not be forced into poverty, like so many thousands of others. The loss of productivity is shameful and dispiriting.

Some consumer/survivors think it is a good idea to get consumer/survivors to work in a consumer/survivor-run business. To most of my friends I spoke of earlier, this is NOT a good idea, as one is permanently labeling themselves and later restricting their employment options, as research and experience has shown that society has not yet progress far enough to recognize the skills and talents of people without the label first. However, for those consumer/survivors who may never work again in a "normal" job, it may be an option for them. If they can be taken off or substantially off disability benefits, that is even a better thing over the long run.

So, it seems that people still do not want to accept people who directly experienced the services of the mental health system. How does one go about resolving that? This is an age-old question.
I, for one, do not like the term "mental illness", not only for its logical inconsistency, but it does contribute to the stereotype of incapacity. Moreover, there is no actual peer-reviewed research that definitively ties mental health diagnosis with a specific physiological cause. This is not to say there is no value in the use of medication, as many consumer/survivors are helped by the different medications prescribed for their condition. Because a medication may "work", it does not mean it corrects a physiological condition, but may provide symptom relief in other ways, such as a person suffering from a major headache taking an Advil. Again, as always, one needs to be informed about their medications and ensure they try different ones before they settle on a cocktail that may eventually be proven to be most effective over time.

But not all so-called "mentally ill" respond to medication or need it. Medication is just one part of an array of services, or weapons, against the problems of the condition. Alternative therapies help many consumer/survivors, as does some forms of psychotherapy. When given a wide range of choices, understanding the benefits and drawbacks to each, a consumer/survivor will eventually find their way. But, to label them "mentally ill" automatically generates a picture of somebody who is "mentally defective" or "mentally incapable", whereas the focus is on what the person cannot do, as opposed to what they can. Advocates attempting to "educate" on mental health issues and to eradicate stigma should take this issue into account.

Nor are persons with "mental illness" likely to be homeless as a direct consequence of their condition either. Unfortunately, the media and even many social workers tend to paint this picture of their clients, as people who are not capable of caring for themselves. Earlier, I referred to the Out of the Shadows at Last report from the Senate. Various deponents slated the percentage of persons with mental health disabilities as unemployed or underemployed as 75 - 90%, which also explains a lot. When you are unemployed, especially chronically so and without access to long-term disability under a private plan, you are forced to impoverish yourself in order to be eligible for the remaining programs, Ontario Works and Ontario Disability Support Program. Neither program pays well and a single person, even on ODSP is several thousands of dollars below the poverty line.

I spoke to a homeless gentleman named John, here in the city. He supposedly had a mental health "history", but he chose homelessness over starvation, because he knew he could not afford both housing and other basic needs on ODSP. As such, most times when I seen him, he was enjoying a meal of sorts. To me, it's the consequent poverty that often arises out of discrimination and stress from the job market that leads to homelessness, not the other way around. Can you live on $572 a month and cover housing, groceries, clothing, transportation and other needs with that? My suspect is that most of the homeless are like John. The only ones where I actually feel their disability itself may have played a part are those that are addicted, as many would "blow their rent money on drugs". For those folks, we simply dry them out and get them treated and housed, but for somebody with only a mental health problem, get them enough money to live on or housing they could afford - period.

One of the consequences of linking so-called "mental illness" itself to homelessness is the danger of it translating into social policy, whereby one's liberties are once again at stake. Proponents of this "model" tend to favour forcing people into mental health treatment -wanted or not - effective or not - on such persons and keeping them under some kind of prison-like condition in the community. They would be under curfew, forced to share their accommodation with others, often with worse problems than their own, and forced to take medication at the risk of being evicted if they don't. While this policy may keep some people on their medication, it does not necessarily "cure" them, nor does it help them progress to citizenship status that we all take for granted. You need to ask yourself if YOU want that kind of quality of life FIRST, before you suggest imposing it on others. Nevertheless, liberalizing mental health incarcerations and follow-up supervision has NOT reduced the homeless numbers one bit.

Instead of attacking people for what they are labeled as, one needs to view all people for who they are. People sharing the same diagnosis are two very different people with different needs, interests and abilities. But nevertheless, they are people first. It is high time we start to demand treatment from mental health professionals and their advocates that assume they can eradicate the stigma by telling everybody how poor John is crazy, hopeless, incapable and delusional, so he becomes homeless ... How does this advocacy make John look like a person, other than distance his problems from those of yours and mine? Instead we need to stop the labeling and let John speak for himself. We might learn something.

Your thoughts?

DISABILITY - WHY IS IT THE PROBLEM OF THOSE WITH DISABILITIES?

Our society's progress on the rights of persons with disabilities is likely akin to what the rights of African-Americans were before Rosa Parks did her famous stand down on the city bus and refused to move to the back, as they were required then. African-Americans received a major boost with the election of President Barack Obama. I am not saying things are now perfect for this group, as still there is far too much poverty, too much racism and too much violence in this population. However, they are many steps away from the rights of persons who are differently abled?

In Hamilton, Ontario, a 22-year old man was lured to an address in a run-down neighbourhood in that city by four males, then subsequently locked up in the attic and beaten within a mere inch of his life. There are reports that he'd been raped, forced to eat his own feces and starved. It turned out this man was someone with various disabilities. An informant in my community told me he suffered from major epilepsy and mild intellectual disabilities. He grew up in several foster homes and of course, when he aged out of that system, they left him on his own. I am not sure of the background of this situation, how well the offenders knew this man and if they were aware of his vulnerability. Nevertheless, they certainly took advantage.

When I was younger, I used to do enumerating for the elections (yes, I am old enough to remember when actual humans used to go knocking on doors). One building on my route housed a number of adults with mental and intellectual disabilities. After I knocked, the woman who answered attempted to push me away by telling me that none of "these people" voted. I phoned the Returning Officer at that time, who then advised me that the owner of a residence like this cannot turn away enumerators, so we returned and pushed ourselves in and interviewed a number of people, many of whom wondered why the manager tried to chase us away.

Nevertheless, a few months after that, a man who happened to live in that home came to a club I was running at the time, complaining that he was fed only one meal a day which consisted of bologna sandwiches and tomato soup, sometimes weiners. When I stirred the pot on the issue (as I never go without stirring pots when I have the chance), some social worker came to my building to try to discourage me from acting further ... I hated social workers since, even though it is one of the professions I worked in for a time.

In another situation, another group home reached the news with workers on strike over what they found were appalling circumstances they found their resident clients living in. They brought attention to the media about spreading a single can of tuna over fifteen sandwiches and handing a man a bus ticket to get to the hospital when he was suffering from chest pains. This man was quickly diagnosed as having a heart attack, but it was too late. He died before anything could have been done for him.

Some of these incidents and many others sparked an enquiry led by Prof. Ernie Lightman, of the University of Toronto, who led the Enquiry on Unregulated Residential Accommodations. I did some work with this enquiry at the local level, interviewed many people who lived in these types of "homes" across the city and made policy recommendations. Steps were taken towards the implementation of a Resident's Rights Act and later under a subsequent government, board and care homes were given some protection under the then Tenant Protection Act.

While these incidents apart from the incident in Hamilton took place in the early 1990's, nothing has changed at all for persons with disabilities. People with disabilities are still viewed as being "less than", "less skilled" and "less valued". This dangerous thinking that preceded the Holocaust whereby hundreds of thousands of persons with various degrees of disabilities were experimented upon, then disposed of (well before the Jewish community was targeted) ... still exists in its most mildest forms. It remains in our laws. It remains in our government programs designed to "help" people with disabilities. It remains in how people with disabilities continue to be viewed by the "able-bodied public" that believe they pay taxes to people that don't want to work and use "disability" as an excuse, or at worst, they campaign for the re-institutionalization of many persons with certain types of disabilities, such as mental health.

Before we can truly address prejudice and discrimination against people with disabilities, we need to address our cultural assumptions. We need to address the pictures that come into our minds when we hear the term "persons with disabilities". For the able-bodied, most see the wheelchair, the walker or perhaps, even the white cane. They believe we should make sure people get access to buildings, restaurants and other destinations so they can go where able-bodied people go. This is the enlightened view. However, even among the enlightened, we fail to see how these same people, as well as many other persons with other types of disabilities that may prevent them from driving, as an example, can get to many of these places in the first place, even if such destinations represented the epitome of accessibility.

Able-bodied people take a lot for granted. They trust that when their brain directs their legs to move and to pick themselves up, they will be able to walk across the room, climb those stairs and read from a regular book or magazine with ease. It is when we lose some of this ability do we realize what we had, how precious, for example, our eyesight, mobility, agility and other physical attributes represent with respect to ensuring we have a quality of life. If this happened to you, I am willing to bet that you would want support services, assistive devices and other systems to "kick in" to allow you to take part in your favourite activities. If our home is no longer useable for us, we want somebody to help us set it up so that we can continue to live there. We don't want to be shunted off to some nursing home.

If your problem is mental health related, and yes -- one in five of us do experience mental health issues at some point or other in our lives. Of that one in five, 10% suffer from what one might identify as a "severe mental health problem", whether it be named schizophrenia, bipolar mood disorder, generalized anxiety disorder, post-traumatic stress disorder, etc. If you have never experienced the serious side of things here, it is too easy to believe the stereotypes ... those being that people with serious mental health problems are either violent and unpredictable, or they are bumbling idiots who are unable to care for themselves. These two are the predominant themes that describe people with mental health issues in the media.

In the 1990's, I managed a local mental health agency, then later moved to work in the policy area. Very few of the affected that came through my door were either violent or bumbling idiots. However, in many cases, their medications often made them look different, or their self-esteem was so low that they did not feel they were capable of ever working again. In my life, there are many examples of people I met even with the most severe of mental health problems who have picked themselves up and made themselves into community leaders. Bill McPhee, publisher of Schizophrenia Digest, and recently a publisher of another magazine geared to people with mood disorders, is not shy about talking about his beginnings ... as a man who was diagnosed as schizophrenia himself. While I may not necessarily take a pro-medical approach, as many of the articles in his magazine depict, he also includes lifestyle issues, advocacy issues as well as spiritual commentary. He has been a public speaker at numerous events before a wide variety of audiences.

Bill Wilkerson, previously an insurance executive, co-founded the Roundtable on Mental Health and the Economy. Former federal Finance Minister Michael Wilson was also part of this initiative. Michael Wilson's interest in the initiative was personal. His son Cameron was reported to have committed suicide at such a tender age when he became frustrated at not being able to find work, despite his education and skills ... he was apparently diagnosed as having a bipolar mood disorder. Bill Wilkerson engaged many others in his initiative and together with other coalitions, the federal government eventually set up the Mental Health Commission, which is designed to help educate, research and train people in this delicate area.

However, in a recent article in the Globe & Mail, Wilkerson began to disclose his own personal interest, a long-term diagnosis of depression, something he kept well-hidden from the media until he believed it to be the right time to disclose. If somebody like Wilkerson, who has been at the top of the business echilon, and with obvious skills to bring this Round Table together, was unable to disclose his personal interest earlier in this project's progress, one can only imagine how others without these significant personal resources would do it.

There are barriers to disclosure. There are too many Vincent Li's out there that commit heinous crimes that are well-publicized (e.g. Li was the man that viciously murdered and dismembered Tim McLean on a Greyhound bus last summer), and to make matters worse ... it becomes well-publicized that he is declaring to "hear voices from God" that apparently directed him to kill McLean. Whether this was true or not, this does nothing for mental health advocates who are attempting to work with those others so labeled to even get them to the door to get help ... we never hear of stories that counter these conclusions, such as how Bill McPhee overcame his disability to become a spokesperson and advocate for the cause, or Bill Wilkerson, who only recently disclosed his own interest in the issue, or Michael Wilson's recount of his son's suicide ... these latter cases are stories we need to hear more about and the Vincent Li's of the world, we need to hear less about.

In a recent edition of Mother Jones magazine, a section was devoted to photos taken of mental hospitals around the world (and yes ... these are hospitals that operate in 2009). In the words of the publisher, it seems that once one is labeled, many people think they can do whatever they want to persons with mental health issues, whether this be experimentation with dangerous therapies, such as ECT or insulin shock, or drugs with questionable benefits, such as haliperidol, lithium and thorazine. I'm not saying that there is no place for medications in the treatment and amelioration of mental and emotional distress. I am saying that the process or dynamic that leads to the labeling of such persons, and how such treatments often become drilled down, are in fact, done to as opposed to done with the person in mind. Often times, people can become further disabled by the treatments themselves.

Culturally, people with disabilities, including people with mental health issues, are not looked upon as credible people in their own right. As a result, many members of the public misunderstand who these people are and assume they either have no skills, or are incapable of learning new ones. Sadly, when I report my own personal knowledge of people in various professions who have had mental health diagnosis, people don't believe me ... and I shield their names, as these folks do not want it to be popularly known that they suffer. One lawyer friend of mine told me he wanted the "secret" sealed, as he feared public knowledge of his "condition" would lead to questions about his ability to practice. While many of these fears may be unfounded, they are realistic enough to know that members of the public may see it differently - that they'd rather not be treated by a doctor they know has been treated for mental health issues or to have a lawyer handle their civil case who was hospitalized a few years ago for a bout of depression ... there are surveys that prove that public opinion is real.

Another lawyer I know has a severe physical disability; shortly after he passed the bar, many of his colleagues challenged his ability to work as a professional, simply because they saw the wheelchair and the breathing apparatus, but not the man. Some people say we need a champion, but nobody wants to be the first one. Nevertheless, the prejudice and stereotypical ideas about persons with disabilities continue.

Even when it is known what education and skills a person with a disability has, employment workers can often be their worst enemy when they attempt to work with them at their career development or transition (in the case of an injured worker, for example). Telemarketing and call centre work seems to be the most sophisticated work a person like this is referred to, as the worker believes the person with the disability wouldn't handle the "stress" of a more advanced position. Well, did they ask? Likely not. This is so analogous with the scene where a person in a wheelchair and a temporarily able-bodied friend are in a restaurant together and the waiter approaches their table, only to ask the able-bodied person what the friend in the wheelchair wants ... something like this happened when I brought a friend of mine who was severely visually impaired, guide dog and all, into a restaurant and the waiter attempted to make me her interpreter ... I just told her, "Why don't you ask her what she wants?". Yet this kind of scene is repeated everyday in the social work and employment agency world when it comes to persons with disabilities ... they don't know what to do with those that know exactly what they want, nor do they know how to deal with employers that seem to deliberately screen people with disabilities out of jobs they can otherwise do quite well. To me, I always wonder why they have these jobs if they are doing nothing to connect the persons with the disability with the employer, but then again, I must be naive.

One person I know that uses a wheelchair felt that those with invisible disabilities had nothing to worry about, but after I gave him a little history of how people with mental health problems, intellectual issues, even autism, were treated, he was shocked ... and realized the importance of working in a cross-disability alliance. All people with disabilities experience discrimination, humiliation, stereotyping and marginalization, although different disabilities may attract different kinds of prejudice. Persons with mental health issues are believed to be stupid and irresponsible at best, or violent and unpredictable at worst. Persons with physical disabilities are sometimes seen as demanding, when they ask for accommodations, when in fact providing them with the same actually puts them on a level playing field with the able-bodied. Scary.

One of these days, I will write about the dangers of ODSP income support and how in itself, it acts to marginalize and isolate persons with disabilities, as well as perhaps, even shorten their lives. As an advocate for persons with disabilities, I am often a lightning rod for comments, as I always try to get people to understand there is always more to every story than meets the eye. I hear all the time from members of the so-called able-bodied public about how people with disabilities can just do "desk work" or they often exaggerate their conditions to get welfare and then not lift a finger to "help themselves". I hear from some people who outrightly say that "at least half of those on ODSP" are not really entitled. I always ask them how they know this -- are they a doctor? Do they know everything about the people of whom they speak? The most interesting thing, however, is when something happens to them and they reach out to our dwindling welfare state to find help to keep them from sinking, they seem to change their minds relatively quickly about what they used to say about so-called "disability people".

The only thing we can do is to iterate the facts, which I will attempt to do in another post later on, so that the reading public can understand what hardships people on ODSP really do endure and how unintended (or intended?) consequences are killing their spirit.

Thoughts?